Greetings from ChemoLand! As this was my first week, I figured I’d get some highlights recorded for posterity’s sake. But before I go there, I want to again thank everyone out there for the amazing support our family has received. Prayers, kind thoughts, well wishes, texts, calls, notes, letters, pop-ins, drive-bys, meals, help with the …
First of all … HAPPY BIRTHDAY TO TEGAN!!!!! She turned 12 yesterday! So yeah, that would mean 12 years ago today, she was chilling under the blue lights of her NICU bed, while the docs were telling us she was born without a bile duct, etc. etc., and throwing around phrases like “incompatible with life.” I …
LONG ONE: IF YOU JUST WANT STRAIGHT-UP NEXT STEPS INFO, SKIP ALL THE WAY DOWN TO WHERE IT SAYS: “So there you have it – here’s where I’m at right now:”) PARENTAL WARNING: the following contains frequent use of BAD MOVIE QUOTES and CHEESY SPORTS METAPHORS, occasional use of FOUL LANGUAGE, and a single reference …
This is a tough update to put together, but I need to get it out there. We’ve known for a couple weeks now that the lung biopsy was kind of an all or nothing situation. If it came back negative, then we’d have a tough, but clear path out of this. If it went the …
Tegan first … Still no actual medical updates as we had to reschedule her appointment this week due to my and Christie’s romantic getaway to NYC. But she’s getting around okay (dare I say improving, even) and is super psyched it’s Halloween weekend! As for me … Biopsy on Thursday went off without a hitch. …
All update post again (too low on gas to even get in wisecracks this time – wait, isn’t that kind of a wisecrack?): This really is turning into an adventure race – made more complicated by the virus. Lung biopsy now lined up for Thursday in NYC (MSK). Blessed to get it done fast and …
All update on this one (but if you’re short on time or interest, I’ll just say upfront we’re still kind of lost in the woods at the moment, and you can check out until we get more concrete info – if you want some details, read on) … #1: we haven’t had T’s follow-up appointment, so …
WARNING: NO UPDATES – THIS ONE IS 100% DIGRESSION, SO FEEL FREE TO CHECK OUT NOW (HEY, I’VE BEEN STUCK IN A HOTEL ROOM IN NYC ALL DAY—WHAT D’YA EXPECT?) … ADVENTURE RACING. Yeah, that’s right, adventure racing. From the beginning, when I first started letting friends and family know what was happening with me, …
Okay, bunch of updates (sorry for length): Tegan dominated her MRI Thursday night. Yes, although an MRI requires you to just lay still, it is indeed possible to dominate it, especially if you’re afraid, you don’t like loud noises, and you don’t like being stuffed in tubes (does anyone?). Report from the sidelines (Christie): first …
Quick update, just cause a few folks have checked in, asking. Unfortunately, I don’t have anything new to report just yet. The biopsy was Friday. It really wasn’t as much fun as I thought it’d be. The nurse said they’d be going in through my back or the side of my ribcage, “cause there’s a …